As you all know, Cody went to Johns Hopkins Hospital in Baltimore, Maryland on June 10th to see a very well known allergist, Dr. Wood. I waited 6 months for this appointment and unfortunately didn't have the appointment that I dreamed about for all those months. The doctor is very knowledgeable and professional and he took Cody's case very seriously which did make me happy. After the appointment, Cody had blood drawn and the doctor said I would hear from him in 2 weeks. Thankfully, my long (almost a month) wait is over. I was pleasantly surprised with the information that the doctors nurse gave me. Here's the 411. :)
We can now introduce corn, oat and soy 1 at a time in small servings. We are to monitor him for any kind of rashes, hives, itching or anything out of the norm. I thought I was giving him soy but it turns out that soy letchium is not a true soy. They want me to introduce him to soy flour and soy. As for corn, I can give him corn chips or corn kernals itself. Again in small servings but not at the same time I try the soy. Lastly, I may introduce oats to him like oatmeal or a special gluten free cereal called oatie o's. I'm beyond excited. To gain 3 types of foods to try is amazing. Our prior allergist had us avoid strawberries, blueberries and all beans and peas. We are allowed to now give him all beans (black, pinto, white, green, etc) and peas which again opens up a whole new array of foods. I'm giggling with delight.
Now we still have to avoid peanuts, tree nuts, egg, wheat, gluten, all fish and shellfish. I am fine with avoiding these foods.
The best and most surprising news from this whole conversation is that Cody will be doing a WHEAT CHALLENGE !!!!! I can't believe it. They feel that since his wheat numbers were going down (from 86 in 2008 to 46 in 2009) and the knowledge that he has potentially eaten wheat products that they feel there is a need for a food challenge. I'm beyond amazement because I never expected this good news. Of course he may not pass it but at least they are willing to try.
So to make a long story short, the conversation with the nurse was so informative. She had my 5 page narrative on Cody's complete medical history and she was actually quoting my information to me over the phone which meant alot since I worked really hard on it. I certainly didn't plan for it to be 5 pages but I wanted to make sure that I had all his history including all medicines he has taken, creams I've applied, bath soaps/shampoos, (which may clarify his eczema issues), all the foods he's eaten, avoided, all his blood tests, skin prick tests and whatever else I felt was important. Cody is our child and my job is to make sure he is healthy and happy. I'll travel wherever I have to to keep him safe. He's a wonderful little boy who deserves a chance at a great life. If it has to be a food allergy life then so be it. But if not, this momma is going to do some awesome cooking and he'll be the 1st to taste it all. :)
Thanks to everyone who has listened to me complain, whine, my ups and downs, good news and bad news. Without you all I wouldn't have the support system I so need to stay strong and learn as much as I can about food allergies.
HUGS and KISSES!!
GOODNIGHT MOMMY AND DADDY
Cody just called us from grandma and grandads house. He was calling to tell us goodnight. His sweet little voice is just too cute. Ken and I totally adore our little Cody. Goodnight sweetie, we'll see you soon.